Thursday, January 17, 2008

What is FA

For those that wanted to know more about FA I went to their website and below is the description of what it is... Please visit their website as well and make a small donation and see the wonderful things this organization is doing for these children.

Below is copied from

What is Friedreich's Ataxia?
Friedreich's ataxia (FRDA) is a rare, genetic, neurodegenerative, multi-system, life-shortening disorder. About one in 50,000 people in the United States have Friedreich's ataxia. Onset of symptoms is usually between the ages of 5 and 15, sometimes even earlier and sometimes significantly later. FARA is supporting research that will improve the quality and length of life for those diagnosed with Friedreich's ataxia and will lead to treatments that eliminate its symptoms.


muscle weakness and loss of coordination (ataxia) in the arms and legs
vision impairment, hearing loss, and slurred speech
aggressive scoliosis (curvature of the spine)
diabetes mellitus or carbohydrate intolerance
a serious heart condition (enlarged heart — hypertrophic cardiomyopathy)
These symptoms reflect the death of cells in certain parts of the nervous system. The mental capabilities of people coping with Friedreich's ataxia, however, remain completely intact. For most, progressive loss of muscle strength and control leads to motor incapacitation and the full-time use of a wheelchair by the late teens or early twenties. Many require surgery for their scoliosis. There are currently no treatments or cures.

The course of the disorder is progressive. Most young people diagnosed with FRDA require mobility aids such as a cane, walker, or wheelchair by their teens or early 20s.

FARA-supported research and scientific conferences provide hope and accelerate research leading to treatments or cure for people diagnosed with Friedreich's ataxia and for those coping with the related Sporadic Ataxias.

Inheriting Friedreich's Ataxia
Friedreich's ataxia is inherited recessively; that is, a person develops the disorder only when he or she inherits genes from both parents. About 1 in 90 people of European ancestry carry the FRDA gene and most of them do not know it. There is a higher incidence of FRDA in the French / Acadian population of south Louisiana. In 1996, an international group of scientists — with cooperation and support from patients, patient families, and their physicians — identified the gene, cloned it, and decoded its sequence. The gene (called X25) was found on the 9th chromosome and carries the instructions for making a protein that was not previously known. The protein was named after the disorder and is called frataxin.

FA donation of squares

Ok ladies and any gentlemen We are needing squares the more the merrier and it is for a great cause
Donna and Myself are teaming up with Jimbo and going to make some awesome afghans to auction off with proceeds (minus shipping) going to FA.
I have been doing tons of research and actually have spoke with a couple of people that have children that have FA I would love for anyone who wants to help out to contact me at also if you want to share your story with us email it to me ill post it.
hopefully with our help we can defeat this aweful disease and teach it no to mess with our kids in honor if this charity collection i am taking my childrens pictures down and would love to post your childrens pictures up if you would like to send me these wonderful childrens pictures or Pictures as Adults so we can see the angels we are fighting for. I would also love to post stories as this evening a wonderful Lady sent me a story that I shared with my own daughter. Thanks so much..... Thanks everyone for helping out....

Ok after having my moment I was looking for squares to be any color and to be the size 6 or 8 inch squares or 2 1/2 inch squares so we can do one of the happy yellow house quiltghans would be great either way we want to do a couple of blankets to get more donations to the organization and please feel free to contact me at my email addy for my address thanks so much

**Color of squares does not matter for the 2 1/2 inch ones some bi color and plain ones would be fine**

Wednesday, January 9, 2008

Lets Make It Our Mission

So its 2008 and I decided this morning to check out my friends blog. Let me tell you about Jimbo. He is like the Grandpa I never had see my one and only i ever had died along with my Grandma when i was 2. Long story but thanks to a brain tumor he went a little crazy and the next morning my mom and dad were planning funerals. Lets skip to several years later when i decided that crocheting should become an Olympic sport and a wooden hook was a necessity. Off to search my fav website Crochetville in hope of finding a great hook idea. Then pops up Jimbo and let me tell you i drooled and drooled even begged to be allowed by my hubby to move up there near jimbo lol.
You see Jimbo is the type of man that would give you his shirt off his back if you needed it no questions asked and 2 hooks later one for me and one for my mom and lots of nice emails sending his support while my granny was passing away, I realized this man should be King.
I was always told that kids think their grandpas can do no wrong they can fix or solve any problem and do it with humor and in away that makes any 5 yr olds eyes light up and Jimbo he is this kinda guy. The guy that reminds me of my dad when my kids look up to him.
So all this comes back to my friend Donna saying take a look at Jimbos Website so off to surf the web i went.
I found this awesome article on his blog about an organization that he supported. I did as I was told by him and went to read up on it. I was floored it is an awesome organization and I want yall to check it out.

Also if you want to find out about Jimbo and see how awesome he is and why people like myself and Donna Love him check out his website.

I know many of you guys that read this might not be able to donate alot but even a dollar if you have it or send me a square ill make a donation for every square i recieve to this organization.

Lets help each other in 2008!!!!!!!!!!!!!!!!!!!!!!